EAS Paediatric FH symposium

Welcome to the7th EAS Paediatric Familial Hypercholesterolemia Symposium

Saturday, 25 May 2024, Lyon, France

This event will take place in Lyon Marriott Hotel Cité Internationale (70 Quai Charles de Gaulle, 69463 Lyon, France) 

*No virtual/ online participation participation

Registration for FREE – Click here to complete your registration

Registration will close on 20 May, 2024


Organised by:
Noel Peretti, Marianne Becker, Olivier Descamps, Jeanine Roeters van Lennep, Urh Grošelj, Mafalda Bourbon, Kirsten Holven, Michal Vrablik, Magdalena Daccord and Steve Humphries

10.00-10.05Welcome – Steve Humphries (UK) and Noel Peretti (France)
10.05-11.20Rare dyslipidemias in children: Clinical presentation and early diagnosis 
Chairs: Noel Peretti (France) and Magdalena Daccord (FH Europe)
10.05-10.20Familial Chylomicron Syndrome (FCS) Sybile Charriere (France)
10.20-10.35Living with Familial Chylomicronaemia Syndrome – the patient experience – Jill Prawer (FH Europe Foundation)
10.35-10.50Lysosome Acid Lipase Deficiency (LAL-D)  Stella Reichmannova (Czech Republic)
10.50-11.05Sitosterolaemia – Diagnosis, Genetics and Management  Emil Asprusten (Norway)
11.05-11.252x Clinical Scenarios – Led by Uma Ramaswami (UK)
11.25-11.50Coffee break
11.50-13.00Is it time to lower targets for initiation and on treatment LDL-C?
Chairs: Kirsten Holven (Norway) and Marianne Becker (Luxembourg)
11.50-12.05The update of the EAS Paediatric FH Guidelines  Albert Wiegman (The Netherlands)
12.05-12.20Treatment goals in FH – time to consider LDL-C burden Martin Bogsrud (Norway)
12.20-12.35Do we need different LDL-C thresholds/targets in different countries? – Kanika Dharmayat (UK)
12.35-12.50The IAS initiative on Neonatal screening for FHRaul Santos (Brazil) 

Compassionate Use of Evinacumab for the Treatment of Homozygous Familial Hypercholesterolaemia (HoFH) in
Children Under 5 Years of age: Clinical Experience Brian McCrindle (Canada)

14.00-15.50How to maximise compliance and adherence to treatment in adolescents with FH Universal Screening in childhood
Chairs: Mafalda Bourbon (Portugal)and Jeanine Roeters van Lennep (The Netherlands)
14.00-14.20What psychological factors influence adherence to treatment in childhood and adolescence? – Fiona Kinnear (UK)
14.20-14.35Maximising adherence: The Australian experienceGerald Watts (Australia)
14.35-14.50Predicting non-adherence in patients with FH – Annette Galema-Boers (Netherlands)
14.50-15.10What do patients find that encourages or discourages adherence to medication and lifestyle advice – Elsie Evans (UK) & Danique van den Bogert (The Netherlands)
15.10-15.25What can we learn from the experience with Type 1 Diabetes – Carine de Beaufort (Luxembourg)
15.25 -15.50Round table discussion with all speakers
15.50-16.00Voting for next year’s topics and Wrap up – Steve Humphries (UK)
16.00-17.00Networking drinks

*The symposium is free of charge for all delegates. Please note that a no-show fee of €100 will be charged if you cancel your participation later than Friday 12 May or do not show up at the symposium.

Thank you to our sponsors