Welcome to the7th EAS Paediatric Familial Hypercholesterolemia Symposium
Saturday, 25 May 2024, Lyon, France
This event will take place in Lyon Marriott Hotel Cité Internationale (70 Quai Charles de Gaulle, 69463 Lyon, France)
*No virtual/ online participation participation
Registration for FREE – Click here to complete your registration
Registration will close on 20 May, 2024
Programme
Organised by:
Noel Peretti, Marianne Becker, Olivier Descamps, Jeanine Roeters van Lennep, Urh Grošelj, Mafalda Bourbon, Kirsten Holven, Michal Vrablik, Magdalena Daccord and Steve Humphries
| 10.00-10.05 | Welcome – Steve Humphries (UK) and Noel Peretti (France) |
| 10.05-11.20 | Rare dyslipidemias in children: Clinical presentation and early diagnosis Chairs: Noel Peretti (France) and Mafalda Bourbon (Portugal) |
| 10.05-10.20 | Familial Chylomicron Syndrome (FCS) – Sybile Charriere (France) |
| 10.20-10.35 | Living with Familial Chylomicronaemia Syndrome – the patient experience – Jill Prawer (FH Europe Foundation) |
| 10.35-10.50 | Lysosome Acid Lipase Deficiency (LAL-D) – Stella Reichmannova (Czech Republic) |
| 10.50-11.05 | Sitosterolaemia – Diagnosis, Genetics and Management – Emil Asprusten (Norway) |
| 11.05-11.25 | 2x Clinical Scenarios – Led by Uma Ramaswami (UK) |
| 11.25-11.50 | Coffee break |
| 11.50-13.00 | Is it time to lower targets for initiation and on treatment LDL-C? Chairs: Kirsten Holven (Norway) and Marianne Becker (Luxembourg) |
| 11.50-12.10 | The update of the EAS Paediatric FH Guidelines – Albert Wiegman (The Netherlands) |
| 12.10-12.25 | Treatment goals in FH – time to consider LDL-C burden – Martin Bogsrud (Norway) |
| 12.25-12.40 | Do we need different LDL-C thresholds/targets in different countries? – Kanika Dharmayat (UK) |
| 12.40-12.55 | The IAS initiative on Neonatal screening for FH – Raul Santos (Brazil) |
| 13.00-14.00 | Lunch |
| 14.00-15.50 | How to maximise compliance and adherence to treatment in adolescents with FH Universal Screening in childhood Chairs: Magdalena Daccord (FH Europe) and Jeanine Roeters van Lennep (The Netherlands) |
| 14.00-14.20 | What psychological factors influence adherence to treatment in childhood and adolescence? – Fiona Kinnear (UK) |
| 14.20-14.35 | Maximising adherence: The Australian experience – Gerald Watts (Australia) |
| 14.35-14.50 | Predicting non-adherence in patients with FH – Annette Galema-Boers (Netherlands) |
| 14.50-15.10 | What do patients find that encourages or discourages adherence to medication and lifestyle advice – Elsie Evans (UK) & Danique van den Bogert (The Netherlands) |
| 15.10-15.25 | What can we learn from the experience with Type 1 Diabetes – Carine de Beaufort (Luxembourg) |
| 15.25 -15.50 | Round table discussion with all speakers |
| 15.50-16.00 | Voting for next year’s topics and Wrap up – Steve Humphries (UK) |
| 16.00-17.00 | Networking drinks |
*The symposium is free of charge for all delegates. Please note that a no-show fee of €100 will be charged if you cancel your participation later than Friday 12 May or do not show up at the symposium.
Thank you to our sponsors
